Kevin's Krew is a group of family, friends and others who have come together to support and help Kevin and his family in his battle with Gorham-Stout (vanishing bone) disease. We are trying to help them with as many emotional, physical and financial needs as possible while they explore the treatments and therapies the doctors recommend to fight this life altering disorder. Our goal is to help restore Kevin to the healthy active lifestyle that he enjoyed before all this was discovered. We truly appreciate all the prayers, donations and well wishes that have been offered so far to help Kevin and his family through the uncertainty and time invested in his diagnosis and treatment. They still have a long road ahead of them and we want to continue our support for them. We will use this web page as another way to keep all of you informed of Kevin's progress and needs. Be sure to check the Blog page often for updates. Please use the links on this page for more information and to help Kevin and others conquer this rare syndrome. Thanks for visting our website!